Brain Tumor
Associations, foundations, societies - USA
r.gif (109 bytes)State-Level Organizations
r.gif (109 bytes)Pediatric Organizations
r.gif (109 bytes)Other

State-Level Organizations

Angels Among Us Durham, NC
raises funds for Preston Robert Tisch Brain Tumor Center

beHeadStrong Overland Park, KS
supports brain tumor patients and caregivers in the greater Kansas City area - through public awareness, education and services; aids organizations working to cure brain tumors

Brain Tumor Fund for the Carolinas (BTFC) Charlotte, NC
increasing public awareness of the impact of brain tumors; providing support for the development of treatment strategies and cooperative biomedical research related to brain tumors in the Charlotte region

Central New Jersey Brain Tumor Support Group (CNJBTSG) Martinsville, NJ
provides personal and group support for survivors, their families, friends, and the medical community

Dr. Marnie Rose Foundation Houston, TX
funding brain cancer research at MD Anderson Cancer Center

Florida Brain Tumor Association (FBTA) Coral Springs, FL
provides hope, support and education to brain tumor survivors and families; funds research; enriches the quality of life of those touched by brain tumor disease

Grey Matters, North Texas' Brain Tumor Support Group Plano, TX
providing emotional and logistical support to brain tumor survivors and their families

Michael Matters Foundation Chicago, IL
increases public awareness, raises funds to provide financial assistance to Chicago area individuals and their family members who suffer from the inevitable impacts of brain cancer

Monmouth and Ocean County Brain Tumor Support Group (MOCBTSG) Oakhurst, NJ
provides support and educational resources to brain tumor patients/survivors, family members, caregivers and others affected by brain tumors or related conditions

Rhode Island Brain and Spine Tumor Foundation (RIBSTF) Providence, RI
offers information online around-the-clock about tumors of the brain or spine, treatment options, research advances, and local resources

Richmond Brain Tumor Support Group Richmond, VA
providing support for brain tumor survivors and their loved ones, promoting awareness for brain tumor issues, and advocating for brain tumor research in Central Virginia

San Diego Brain Tumor Foundation (SDBTF) San Diego, CA
providing information and support for brain tumor patients and their families

Zachary Carson Brain Tumor Fund Brookline, MA
supporting research of diffuse intrinsic pontine gliomas (DIPGs) at Dana-Farber Cancer Institute

Western North Carolina Brain Tumor Support (WNC BTS) Asheville, NC
adult support group for brain tumor survivors, their families, and caregivers

Pediatric Organizations

Benny's World Lake Forest, IL
funds research to find a cure for pediatric brain stem tumors, specifically targeting diffuse intrinsic pontine glioma (DIPG)

Brain Tumor Foundation for Children (BTFC) Atlanta, GA
provides emotional and informational support to families of children with brain tumors; provides public education and awareness of the disease; raises funds to support research for a cure and for the improvement in the treatment and quality of life of the victims of pediatric brain tumor disease

Childhood Brain Tumor Foundation (CBTF) Germantown, MD
raises funds for scientific research, heightens public awareness, improves prognosis and quality of life for those that are affected

Children's Brain Tumor Foundation (CBTF) New York, NY
improves the treatment, quality of life and the long term outlook for children with brain and spinal cord tumors through research, support, education, and advocacy to families and survivors

Children's Neuroblastoma Cancer Foundation (CNCF) Bloomingdale, IL
educates the public and pediatricians; provides research grants; provides a forum for patients and family members

Children's Tumor Foundation New York, NY
improving the health and well being of individuals and families affected by the neurofibromatoses (NF)

Cure Starts Now Foundation Cincinnati, OH
awards research grants with focus on pediatric brain cancers with a specific concentration on Diffuse Intrinsic Pontine Glioma (DIPG)

Emily Dorfman Foundation for Children Northbrook, IL
raises funds to support those who will find cures and provide needed supportive services for ill children

Jeffrey Thomas Hayden Foundation (JTHF) West Chester, OH
supports research efforts to find a cure for pediatric brain tumors, provides parents with the latest information to help them make the best decision for their children

Josephine Marie Herzon Memorial Foundation (Josie Foundation, TJF) Webster Groves, MO
raises funds through community activities and distribute those funds to organizations that further our dual objective: (i) to find a cure for diffuse intrinsic pontine gliomas in children, and (ii) to provide recreation, comfort, and emotional support to children diagnosed with this and other life-threatening diseases

Kamen Brain Tumor Foundation New York, NY
funding of pediatric glioma brain tumor research

Kortney Rose Foundation (KRF) Oceanport, NJ
raising funds to support research and education related to the treatment and cure of pediatric brain tumors

Maeve McNicholas Memorial Foundation Chicago, IL
increases public awareness about childhood brain tumors; aids in early detection of childhood brain tumors by increasing awareness of symptoms; helps to find the cause and cure of childhood brain tumors through the support of medical research; helps support families with children living with brain tumors

Making Headway Foundation Chappaqua, NY
care, comfort, and cure of children with brain and spinal cord tumors

Matthew Larson Pediatric Brain Tumor Foundation Franklin Lakes, NJ
raises the awareness and funds necessary to overcome pediatric brain tumors and to help the affected children and families

Mikey Czech Foundation New Canaan, CT
finances medical research for pediatric brain tumors, including DIPG pediatric brainstem tumors

Neuroblastoma Children's Cancer Society (NCCS) Hoffman Estates, IL
raises money to assist local research in neuroblastoma cancer, raises national awareness to focus additional research and funding

Pediatric Brain Tumor Foundation of the United States (PBTFUS) Asheville, NC
supporting medical research, increasing public awareness, aiding in early detection and treatment of childhood brain tumors

Pediatric Low Grade Astrocytoma (PLGA) Foundation Chappaqua, NY
increases awareness, education, fundraising and research of pediatric low grade astrocytomas

Prayers From Maria Foundation Bay Village, OH
funding global research into the causes, prevention, treatments, and cure for the childhood brain tumors known as gliomas; raising public awareness about gliomas

Rachaelís Ribbons of Hope Foundation Penrose, CO
raises funds for pediatric brain tumor research, heightens public awareness

Reflections Of Grace Foundation Irwin, PA
providing financial, emotional, and educational support for children and their families affected by pediatric brain cancer; raising awareness of all types of pediatric brain tumors, with a particular focus on Diffuse Instrinsic Pontine Gliomas (DIPGs), or Brainstem Gliomas

Ride for Kids Asheville, NC
supports the efforts of the Pediatric Brain Tumor Foundation of the United States (PBTFUS)

Smiles for Sophie Forever (SFSF) Avon Lake, OH
provides financial and emotional support to families burdened by pediatric brain tumors; promotes awareness of not only pediatric brain tumors, but also an awareness of the lack of funding allocated for pediatric brain cancer research

Tanner Seebaum Foundation (TSF) Centennial, CO
funding children's brain tumor research

Wylie's Day Foundation (WDF) Ambler, PA
providing direct funding for research towards the day a cure is found for pediatric brain tumors


AANS/CNS Section on Tumors New York, NY
provides a forum for education and research on tumors of the nervous system; coordinates activities and programs relating to tumors for the AANS and CNS and other societies, committees and agencies

American Academy of Neurology (AAN) Saint Paul, MN
provides resources for medical specialists who are committed to improving the care of patients with neurological diseases

American Association of Neurological Surgeons (AANS) Rolling Meadows, IL
neurosurgical educational opportunities, clinical news, legislative activities, practice management resources

American Brain Tumor Association (ABTA) Des Plaines, IL
information about brain tumors, treatment options, clinical trials and living with a brain tumor

Ben and Catherine Ivy Foundation Palo Alto, CA
funds patient-focused research on gliomas leading to the development of better diagnostics and treatment that offer long-term survival and a high-quality of life for patients with brain tumors

Brad Kaminsky Foundation for Brain Tumor Research (TBKF) Ashburn, VA
raises awareness of brain tumors, raises funds for research

Brain Science Foundation (BSF) Wellesley, MA
supports basic and clinical research, promising new treatments, and opportunities to improve the quality of patient care

Brain Tumor Foundation (BTF) New York, NY
promotes a novel early-detection screening program for brain tumors; holds an annual Brain Tumor Awareness Day; offers support groups for brain tumor patients and those who care for them

Chris Elliott Fund for Glioblastoma Brain Cancer Research (CEF) Sammamish, WA
raises awareness for brain cancer; funds research; provides resources, information and support for people living with brain cancer

Congress of Neurological Surgeons (CNS) Schaumburg, IL
promotes the advancement of neurosurgery through education, research, and scientific knowledge

Glenn Garcelon Foundation Coppell, TX
improves the quality of life of brain tumor survivors, caregivers and their families by providing emotional and financial support

Goldhirsh Foundation Branford, CT
funding innovative brain cancer research

Gray Matters Foundation Cave Creek, AZ
supports and empowers people impacted by brain tumors through outreach, awareness and assistance programs

Head for the Cure Foundation (HFTC) Kansas City, MO
supports organizations and programs that research the cause and cure of brain cancer and provide support for brain cancer patients and their families

Kevin J. Mullin Memorial Fund for Brain Tumor Research Lancaster, OH
funding brain tumor research

Meningioma Mommas Highlands Ranch, CO
raising meningioma awareness and funding for meningioma specific research

Musella Foundation For Brain Tumor Research Hewlett, NY
improving the quality of life and survival times for brain tumor patients by using computer technology to streamline the flow of information

National Brain Tumor Society (NBTS) Watertown, MA
funds strategic research, delivers support services, promotes collaboration

New Approaches to Neuroblastoma Therapy (NANT) Los Angeles, CA
consortium of universities and hospitals funded by National Cancer Institute to test new therapies for neuroblastoma

Nick Gonzales Foundation Carrollton, TX
raises public awareness of the early warning signs; supports brain tumor/cancer research

Rory David Deutsch Foundation Highland Park, IL
funding medical research and programs; increasing public awareness; creating opportunities to engage young people and adults in activities that can make a positive difference in their lives

Society for Neuro-Oncology (SNO) Houston, TX
promoting advances in neuro-oncology through research and education

Sontag Foundation Ponte Vedra Beach, FL
funds research on brain cancer

Southeastern Brain Tumor Foundation (SBTF) Atlanta, GA
improves the quality of life for brain tumor patients and their families by offering information, education, and support services; raises funds for research and medical personnel

Students Supporting Brain Tumor Research (SSBTR) Scottsdale, AZ
raises money for brain tumor research

T.H.E. Brain Trust Cambridge, MA
community for sharing information and support about brain tumors and related conditions

Tug McGraw Foundation Napa, CA
raises funds for pioneering brain tumor research; increases public awareness of the disease

Voices Against Brain Cancer (VABC) New York, NY
advancing scientific research, increasing awareness within the medical community and supporting patients and families afflicted with this devastating disease

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